Living with HS...I have been living with HS since 2007. The first one started out at the base of the tail bone then it...reactionscomments
Warm Hug Apple Cake...I have been experimenting lately with alternative ingredients. Well, an alternative to me - I grew up with old-fashioned wheat flour, full...reactions3comments
Communication, Body Language, and HS...Communication is one of the most important aspects of life. It sets a positive tone to create and to maintain long lasting...reactions2comments
HS Journey...I have gotten one lesion for years. Around 2012 I got several lesions in the groin area. No one knew what it...reactionscomments
My Battle Again...This is now April 2022.. My Dermatologist dismissed me from her treating me for Hidradenitis Suppurativa. I felt alone again with this...reactionscomments
Chronic Illness and Burnout: Recognizing the Signs (Part 1)...We have all been there before. You have received your diagnosis, sat in your thoughts about said diagnosis, and now you feel...reactions4comments
Fishing For A Cure...One thing that has worked for managing my mental health dealing with HS has been the outdoors. I spent so much time...reactions1comment
Friendships & HS (Part 1)...How do you talk about what we go through with friends and family? How has HS affected your relationship and friendships? Has...reactions1comment
Rolling On With HS: Why I Made The Decision To Start Using Mobility Aids...I have had HS since I was 13 years old. All through high school, it spread across both my inner thighs and...reactionscomments
Recipe for Art: Wrapping Stones...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity...reactions2comments
How I Learned To Accept My Scars As A Masterpiece (Part 1)...“My scars help create the masterpiece that is me.” I begged my eyes to acknowledge my broken reflection in the mirror as...reactions1comment
How I Learned To Accept My Scars As A Masterpiece (Part 2)...In case you missed it, check out Part 1 of this series! Months preceding this moment, I was sitting on the exam...reactions3comments
HS & Grief...Dealing with HS is tough. There's no other way to say it. When I go through periods of being well and having no...reactionscomments
Navigating The Bad Days...This video is all about getting through the bad days and what keeps me going. I share some of the things have...reactionscomments
Recipe for Art: Trouble Dolls...Sometimes during a flare or especially painful lesions, those of us with HS can be stuck in a loop of depression and...reactionscomments
Finding The Inner Warrior Within You...In this video, Chaz encourages other HS Warriors by sharing a story of a situation that helped him find his inner warrior...reactionscomments
A Disease Beyond Just Flare-Ups: How HS Can Cause A Dent In Relationships...I was in my early 20’s when I finally learned to correctly pronounce the tongue twister – Hidradenitis Suppurativa. Indeed, it was...reactionscomments
Recipe for Art: Googly Eye Coaster...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity...reactionscomments
In A Pool Of Blood...In case you missed it, check out Part 1 of this series, Complexities of Disease Management and Single Parenting. At first, I...reactions7comments
This Is What Happens During A Remicade Infusion (Part 1)...Two years ago, my dermatologist and I decided to stop Humira and try a different TNF inhibitor, Remicade (infliximab). As an off-label...reactions2comments
