Tips for Managing Stress with HS...We all suffer from stress from time to time, it's inevitable. Stress and HS tend to go hand in hand because let's be real - how could they not? When...Reactions0reactionsComments3 comments
Boiling Point: Results from the 2nd Hidradenitis Suppurativa In America Survey...For many people with hidradenitis suppurativa (HS), there comes a point when it seems there are no treatments that provide relief from the pain and complications of HS symptoms. It...Reactions0reactionsComments1 comments
The Blue Light Treatment (Part 2)...In case you missed it, check out Part 1 of this series! The first minute was okay. 'Okay' translates to heat as if you are sitting on a leather seat...Reactions0reactionsComments0 comments
Anti-Inflammatory Ginger Lemon Turmeric Tea...Tea has become a part of my daily routine and a wonderful part of rebuilding my gut health. As HS patients, our bodies are prone to inflammation. Because of this...Reactions0reactionsComments3 comments
Flare Stories: An HS Flare That I’ll Never Forget...I like to think that life consists of a collection of moments ranging from the most memorable times to everyday living. When I look back on the most memorable times...Reactions0reactionsComments0 comments
HS Pain, itching and going nuts!...Hi Im 42, married with 2 girls, I 1st felt a bump under my armpit and went to the doctor. I was told it was HS because of other bumps...Reactions0reactionsComments6 replies
The Blue Light Treatment...It took me nine years to get my diagnosis of HS. By the time I did, I was wavering between stage I and II, and the majority of my activity...Reactions0reactionsComments0 comments
Dating and relationships...I want to hear your stories about dating. Is it difficult now or has it always been difficult to navigate? What are the things you wish could change? What feels...Reactions0reactionsComments0 repliesIntimacy & RelationshipsTips & AdviceMental Health
Medical Trauma...Has anyone researched ways to connect back to the body after medical trauma? I wonder how the research could help HS patients especially because we deal with medical trauma sometimes...Reactions0reactionsComments3 repliesTreatmentTips & AdviceMental Health
Ways To Handle A New HS Diagnosis (Part 1)...In this video, Chaz discusses the day he received his hidradenitis suppurativa diagnosis. He talks about his emotions, feelings, and his overall experience from that day. Check out Parts 2...Reactions0reactionsComments1 comments
Missteps and Misdiagnoses (Part 1)...I first noticed it in May of my senior year of high school. A small, purple-ish, veiny bump had emerged from my right armpit. It was squarely in the middle...Reactions0reactionsComments1 comments
🚩🚩 Red Flags 🚩🚩...What are some red flags in healthcare providers?...Reactions0reactionsComments6 repliesHealthcare Team
Mental Health...Mental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...Reactions0reactionsComments3 repliesDepression
The Mental Labor of Chronic Illness...When I was 17 years old, I got my HS diagnosis after 4 years of painful, recurring abscesses. Little did I know this would be the beginning of a lifelong...Reactions0reactionsComments0 comments
IPL Success...I’ve had HS since around age 11 (now 16). I have tried antibiotics - didn’t work; AIP diet- made me extremely weak + using antibacterial washes etc. none of these...Reactions0reactionsComments1 repliesTips & AdviceTreatment
What Do Food Labels Mean?...A food label can tell you a lot about what you are eating. It shows the number of calories and serving sizes of different foods and provides a breakdown of...Reactions0reactionsComments0 comments
Friendships & HS (Part 1)...How do you talk about what we go through with friends and family? How has HS affected your relationship and friendships? Has hidradenitis suppurativa impacted your personal relationships? As someone...Reactions0reactionsComments1 comments
Hs in your hair and possible hair extensions....Hi! I’m sorry if this is a silly question but I get he slightly in my scalp. Like some bumps with hurt or some scabs will form it’s not horrible...Reactions0reactionsComments2 repliesCopingFlares
Painsomnia: How To Build A Healthy Sleep Routine Around The Pain of HS...You’ve probably been there: Tossing and turning, desperate for sleep but in too much pain to do so. Sleep hygiene is an important part of physical and mental health, but...Reactions0reactionsComments1 comments
Where Do I Start? How to Share Your Hidradenitis Suppurativa Story..."I want to share my story but don't know how to start." If this sounds like you, you are not alone. We have heard people in the hidradenitis suppurativa (HS)...Reactions0reactionsComments3 comments
