Mental Health...How do you take care of your mental health?...Reactions0reactionsComments3 repliesTips & AdviceCopingDepression
Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life Impact...Hidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to manage, painful, and embarrassing. We asked about day-to-day...Reactions0reactionsComments0 comments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis Suppurativa...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Isela, and she shared how important it is...Reactions0reactionsComments0 comments
HS worse after pregnancy...Hi All, I was recently diagnosed with HS, my flare ups tend to happen under and on the sides of my breast, but I also get flare ups between my...Reactions0reactionsComments0 repliesCopingDepression
A Quick Update!...Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the time to explain what’s been going on with...Reactions0reactionsComments2 comments
Daily hygiene questions ...My question is how do you handle daily hygiene? I saw the home treatments section but this question is more about cleaning. I am fairly new to the diagnosis and...Reactions0reactionsComments11 replies
Ask the Advocate: Community & Advocacy...Finding community has been a source of strength and inspiration for so many folks with hidradenitis suppurativa (HS). Finally, a space where we speak the same language, people get what...Reactions0reactionsComments0 comments
Letting Go Of Shame: Alice's Journey Opening Up About Her HS...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Alice, and she shared how she's learned to...Reactions0reactionsComments0 comments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)...Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help. You deserve support and healing, and I promise...Reactions0reactionsComments0 comments
Ask the Advocate: Wound Care & Home Remedies...Managing hidradenitis suppurativa (HS) wounds can be challenging. What might work for one HS warrior might not work for another. It is a balancing act that takes patience, perseverance, and...Reactions0reactionsComments0 comments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Kristen, and she shared how she manages her...Reactions0reactionsComments0 comments
Red Flags in Healthcare Providers: When Do I Say 'No?'...Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and countless other nurses and medical practitioners. Through experience...Reactions0reactionsComments1 comments
Pomegranate Spritzer...The heat is here and that means we all could use something refreshing to cool us down. As HS patients I know we have to sacrifice a lot of the...Reactions0reactionsComments4 comments
Embracing Change: Kim's Journey With Hidradenitis Suppurativa...Editor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews...Reactions0reactionsComments0 comments
Doctors for Hidradenitis Suppurativa...What qualities do you look for in a doctor?...Reactions0reactionsComments13 repliesHealthcare Team
A Real Unicorn (Doctor): Part 2...In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try the topical cream, but because of one of...Reactions0reactionsComments14 comments
Meera Thirtha...Meera Thirtha is a single mother and lives in India. When she was in her late thirties her husband passed away. With an aging mother and a young daughter to...
Travelling with HS...Hi guys! I'm off to Germany next week and I'm wondering do any of you guys have any tips and tricks on travelling with HS?? I'd love to hear. What...Reactions0reactionsComments1 repliesTravel
A Real Unicorn (Doctor): Part 1...Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you lump all of these together, they are comorbidities...Reactions0reactionsComments6 comments
Overcoming Adversity: Hayley's Journey to Acceptance...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Hayley and she shared why she has chosen...Reactions0reactionsComments0 comments