My HS Story: The Pain of Misdiagnosis...Developing Hidradenitis Suppurativa in the mid to early 2000s was frightening as an 11-year-old because every physician I saw had every speculation in the world but no solid diagnosis. HS...Reactions0reactionsComments0 comments
HS Awareness Week 2021: #UnhideHS...HSDisease.com is excited to celebrate our first HS Awareness Week with all of you! While it is important to raise awareness all year long, it is time to go extra...Reactions0reactionsComments1 comments
FeaturedWhat is something you wish others knew about HS?...Reactions0reactionsComments115 repliesAwareness
Thread of Positivity: Show me your pets!...I wanted to start a thread of positivity so people who were feeling down had somewhere to go to cheer themselves up. Show me the adorable creatures who help you...Reactions0reactionsComments3 repliesCopingCaregivingDepression
AIP Diet as a vegan - have you tried it?...Has anyone tried the Automimmune Protocol Diet, also known as AIP? Any tips or tricks for doing it, especially if you're vegan for medical reasons and have to try it...Reactions0reactionsComments2 repliesDiet & Nutrition
Starting Humira; Any tips for self injection?...I've been prescribed Humira and to be honest I'm terrified about having to inject myself. I have a substantial fear of needles and I'm really worried about the whole experience...Reactions0reactionsComments0 repliesWound CareDepressionDermatologist
HS Flares...Does anyone else have PTSD from HS flares? I find myself afraid to do anything because I'm not sure what will trigger my body to break down. The unpredictability of...Reactions0reactionsComments11 repliesPainTriggersFlares
Can HS stay mild?...I am 30 years old and was recently diagnosed by my dermatologist with possibly having “very mild” HS. She described it as “the most mild case she’s ever seen” if...Reactions0reactionsComments2 repliesDiagnosisNewly DiagnosedAwareness
Do you think there is a stigma around HS? How can we combat that?...Let's face it, we all want to belong. No one wants to feel as if they are an outsider. It feels good to belong and as a community, what can...Reactions0reactionsComments2 repliesDermatologistAwarenessMental Health
25 Songs to Empower You...I’ve said it before and I’ll say it again: music is a powerful thing. There have been so many times where I’ve heard a song start playing and it takes...Reactions0reactionsComments1 comments
How Having A Chronic Illness Gave Me More Time to Dream...I find that being diagnosed with a chronic illness has made me become more of a reflective person now more than ever. On days when I’m not having a terrible...Reactions0reactionsComments3 comments
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Medically Misgendered: Fighting For Appropriate Care As A Non-Binary Person...I am non-binary and I use the pronouns she/they. For me, this means I do not subscribe to any gender. I sometimes present as 'feminine' and sometimes as 'masculine', sometimes...Reactions0reactionsComments4 comments
My HS Story (Part 2)...In case you missed it, read Part 1 of Jasmine's HS Story. I am a privileged patient. I've had access to great healthcare all of my life. This access was especially...Reactions0reactionsComments0 comments
HS and PCOS: My Experience Having Both and Why They Might Be Related...PCOS, or polycystic ovarian syndrome, is a common comorbid condition for those that have Hidradenitis Suppurativa. I have both and want to share my experience trying to treat them both...Reactions0reactionsComments2 comments
The Skin I Am Stuck In: Results From the Hidradenitis Suppurativa In America Survey...From misdiagnosis and managing flares that show up overnight to the emotional toll of pain and isolation, it is normal to feel overwhelmed by the challenges of life with HS...Reactions0reactionsComments2 comments
Advice for the Newly Diagnosed...I was diagnosed with hidradenitis suppurativa 7 years after my first flare. I felt conflicting emotions after my diagnosis. It took me a long time to learn how to advocate...Reactions0reactionsComments0 comments
What do you think would be the best job for someone who suffers from HS?...Hello to all, As someone who has been living with HS for 14 years and counting, thankfully I was still able to maintain employment throughout the years, despite how progressively...Reactions0reactionsComments15 repliesAwarenessWork & Employment
Low Carb Snack Ideas...If you’ve read any of my previous articles, you might already know that my Hidradenitis triggers are gluten and processed sugar (besides stress, anxiety, and depression). Whenever I have anything...Reactions0reactionsComments1 comments
How A Trip to the Dermatologist Crushed My Treatment Dreams (Part 2)...Check out the Part 1 of this series How A Trip to the Dermatologist Crushed My Treatment Dreams. The doctor rushed out of the room and left us waiting for...Reactions0reactionsComments0 comments
