Active todayFind a Doctor that knows HS...I tried everything to heal up the tunneling abscess!! Under my arm, my groin and my buttocks. I couldn't even put all my weight down on my butt. Finally I...reactions1replyTreatment
HS and Family...I’m submitting this for my 23-year- old son who is also autistic. His symptoms began when he was in junior high school. It seemed like a large boil on his...reactionscomments
Active 7 days agoManagement of acute HS flare up pregnancy ...Does anyone have any experience with intralessional kenacort injection during an acute flare up whilst pregnant ? If I have ever had a flare up of my HS in the...reactions4repliesFlaresSide EffectsResearch & Clinical Trials
Heart pain and h.s ?...Hello to anyone , iv being experiencing pain in my heart area for 3 years & recently being diagnosed with h.s . Has anyone also had this heart pain ?...reactions7repliesSymptoms
Beauty Is Skin Deep...I was told my entire life I wasn't beautiful enough. I was too dark. My skin was too damaged. I wasn't going to be anything other than an extra in...reactionscomments
L- Lysine for HS Disease...I've been taking 1000 mg of L- Lysine daily! I haven't had a big flare since! It is for skin and tissue maintenance. Not sure this is what's working, but...reactions1comment
Active todayHelp! I am being treated with bimzelx...Hi. I'm fm, almost 68. I'm now being treated with Bimzelx for my stage 3 hidradenitis and, 8 shots later, this has driven my HS through the roof! It's my...reactions2repliesTreatment
Learning to Heal: My Journey With HS Disease and Self-Acceptance...Living with hidradenitis suppurativa hasn’t been easy. At first, I didn’t even understand what was happening to my body — just that the pain, the scars, and the flare-ups were...reactionscomments
How do you emotionally cope with HS flare-ups and body image issues?...Hi everyone, I’ve been living with HS for a while, and one of the most difficult parts for me isn’t just the physical pain — it’s the emotional toll it...reactions1replyCoping
I am seeing long time HS lesions decreased in size using Peptides....My Functional Medicine Physician recommended my taking BPC 157 Peptide for my hiatial Hernia. I started three months ago and committed to a 6 month trial. Interestingly enough what I...reactions1replyWound Care
Active 5 days agoStudents with HS?...Hey, I'm a student with HS in uni rn. I'm a bio major and like with most other stem majors its a ton of work -- I've had HS since...reactions3repliesTips & Advice
Miracle Treatment for Me...Hi everyone. I am 52 years old and been dealing with terrible symptoms due to hs since my early 30s. I have tried everything and nothing helped. I read in...reactions3repliesOTC MedicationTreatmentWound Care
Hidradenitis Suppurativa is a Monster...HS has taken a lot of physical glory. I'm out of shape and tired throughout the majority of the day, unless I tea-up or drink beer. Both of my armpits...reactions1comment
I think I found the cure for HS. At least for my own. Maybe yours too!...I've been trying to pass this on for awhile now. Not easy for some reason. After 25 years of suffering, half a dozen doctors and eating pails of antibiotics and...reactions7repliesTreatment
Caregiving and Coping With HS Pain...I had just moved into my latest apartment a few months prior when I noticed a little dark-haired lady waving at me. She said, "Hello, I haven't seen you before."...reactions2comments
Humira medication and avoiding sugars...Being that hs is an autoimmune disease I recently had a major flare up in part cause by myself and other issues. First , I kind of forgot to take...reactions1replyDermatologistFlares
Hairremoval for hs...Wonder if somebody here have get hairemoval by IPl at professionell skinclinic...reactions1replyTreatment
No Hidradenitis Outbreaks Since Treatment for H. Pylori...Hi there, I am new here but have been dealing with Hidradenitis since 2014. Over the years I found that histamine producing food like yogurt, almonds, tomatoes, peppers and a...reactions10repliesDiagnosisTriggersSymptoms
Family Planning: Passing HS to Children...My sister called me a little stressed out; my niece had another boil on her chest. She told me she thought she may have hidradenitis suppurativa. My niece has been...reactionscomments
