Active yesterdayJust diagnosed!!...I'm 46 about 3 months ago I got what I thought was a infected or ingrown hair in my left arm pit. I have never had anything like this happen...reactions2repliesCopingTreatment
Partial Mastectomy Due to HS...I’ve been an HS warrior for over 25 years. I went undiagnosed for years. In 2024, I was diagnosed after many years of treating breast infections. After being on antibiotics...reactions1comment
HS Support Groups: Navigating Negativity and Reaping the Benefits...We want to feel buoyed when we participate in support groups – uplifted and lightened of the emotional and physical tolls hidradenitis suppurativa can take on our lives, right? So...reactionscomments
Creams for easing soreness ...Hi everyone 👋 Has anyone ever used The Witch Hazel Experts | Calamine, Tea Tree & Witch Hazel? I read about it on another forum and thought I’d try it...reactions2repliesCopingWound Care
Tips for Navigating Caregiver Burnout...The whole definition of caregiving changed after COVID enveloped the globe. The tasks and approaches toward looking after the sick, elderly, or differently abled forced friends and family members to...reactionscomments
24 / 7 pain ...Been going through this for years 20 plus. I have tried everything. Nothing seems to work. It seems to get worse as I age. I have been on antibiotics, Humana...reactions1replyPain
HS flares & processed meats ...I'm a 78 yr old woman who has just experienced her first and only hs boil/cyst/lesion appx 10 months ago. The first time it flared I was experiencing extreme &...reactions2repliesDermatologistDrainageDiet & Nutrition
Combatting Loneliness for Better Health...Each person's experience of loneliness can be varied and individual-specific. For some, moving to a new area or country might trigger a difficult emotional response and, for others, experiencing a...reactionscomments
HS Flared, I Panicked, ChatGPT Delivered...After a much-needed vacation, I was expecting to come home relaxed and refreshed. Instead, I walked through my front door and straight into one of the worst HS flare-ups I’ve...reactionscomments
Let's Talk About It: Observations of Support Groups..."Join the club!" Does this phrase make you laugh or cringe? Do you dress to blend in, and hope no one notices you? Or do you like for everyone's head...reactionscomments
Find a Doctor that knows HS...I tried everything to heal up the tunneling abscess!! Under my arm, my groin and my buttocks. I couldn't even put all my weight down on my butt. Finally I...reactions3repliesTreatment
HS and Family...I’m submitting this for my 23-year- old son who is also autistic. His symptoms began when he was in junior high school. It seemed like a large boil on his...reactions2comments
Management of acute HS flare up pregnancy ...Does anyone have any experience with intralessional kenacort injection during an acute flare up whilst pregnant ? If I have ever had a flare up of my HS in the...reactions4repliesFlaresSide EffectsResearch & Clinical Trials
Heart pain and h.s ?...Hello to anyone , iv being experiencing pain in my heart area for 3 years & recently being diagnosed with h.s . Has anyone also had this heart pain ?...reactions7repliesSymptoms
Beauty Is Skin Deep...I was told my entire life I wasn't beautiful enough. I was too dark. My skin was too damaged. I wasn't going to be anything other than an extra in...reactionscomments
L- Lysine for HS Disease...I've been taking 1000 mg of L- Lysine daily! I haven't had a big flare since! It is for skin and tissue maintenance. Not sure this is what's working, but...reactions1comment
Help! I am being treated with bimzelx...Hi. I'm fm, almost 68. I'm now being treated with Bimzelx for my stage 3 hidradenitis and, 8 shots later, this has driven my HS through the roof! It's my...reactions2repliesTreatment
Learning to Heal: My Journey With HS Disease and Self-Acceptance...Living with hidradenitis suppurativa hasn’t been easy. At first, I didn’t even understand what was happening to my body — just that the pain, the scars, and the flare-ups were...reactionscomments
How do you emotionally cope with HS flare-ups and body image issues?...Hi everyone, I’ve been living with HS for a while, and one of the most difficult parts for me isn’t just the physical pain — it’s the emotional toll it...reactions1replyCoping
