Living with HS and hiding it...Living with this very painful disease and hiding it from family and friends and not being able to concieve a pregnancy because...reactions1reply
I’ve finally outgrown HS...I was 20 years old when I got my first boil. It was a doozy. About as big as 3 golf balls...reactionsrepliesAwarenessCopingDepression
45 Things Not to Feel Guilty About Due To Having HS...I find that I tend to carry guilt and sometimes it has to do with my hidradenitis suppurativa. HS is so difficult...reactions2comments
My Consultation With A Surgeon About Undergoing Armpit Surgery...So the thought of possibly undergoing surgery has been on my mind lately, and so I decided to meet with a surgeon...reactionscomments
The Isolation Of Hiding My HS From People (Part 2)...In case you missed it, check out Part 1 of this series! Eventually, at the end of the semester, I came clean...reactions1comment
How to Handle Insurance Denials and Limits...Finding out that your health insurance company has denied a claim can be frustrating and complicated. Your insurance company must provide you...reactionscomments
Meeting With A New Dermatologist (Part 2)...In this video, I speak about how the appointment at my new dermatologist went. In case you missed it, check out Part...reactionscomments
One Month Check-Up With My New Dermatologist...Hello beautiful people, in todays video, I speak about my recent one moth check up with my new dermatologist. To say the...reactionscomments
Self-Care Tips For People With HS...Self-care is important no matter who you are but having a chronic illness means taking extra steps to ensure you're taken care...reactionscomments
Spironolactone, doxycycline (for rosacea),metformin...So my dermo prescribed metformin(I am not diabetic, spironolactone (I've been taking that since Aug 2022 ) and anyway my period is...reactions1reply
Taking Ownership Of Your Diagnosis (Part 2)...In the second video in this series, I discuss how important it is to take a step. I encourage HS warriors to...reactionscomments
How I Budget Money With A Chronic Illness...Aside from the physical challenges of having a chronic illness, the financial challenges are one of my biggest stressors. I am lucky...reactions2comments
Taking Back Bath Time...When I was younger, I used to love bath time. I would bring in my dolls and toys, swim around (well, swim...reactionscomments
Will You Take Our 2023 In America Survey?...**Survey closed** It's unknown how many people live with HS, but we do know HS impacts the social lives, employment opportunities, and...reactions1replyResearch & Clinical Trials
Recipe for Art - Wax Stained Glass...Sometimes, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings...reactionscomments
You all realize it's Autoimmune ...Fat may contribute but doesn't cause. The pores aren't actually clogging from the outside. Your immune system is telling your white blood...reactions7replies
TV Shows That Will Make You Laugh When You're Feeling Down...As a child, I found peace in watching television, for the fantasy, and the investment in other people's lives that were not...reactionscomments
Asking for a Friend: Making New Connections as a Chronic Disease Patient...Six times in my adult life I have had to start over in a new state. It hasn't been easy. There were...reactions3comments
Products I Use To Help Manage My HS (Part 3)...In this video, Joey shows us more of his favorite items that help him properly manage his hidradenitis suppurativa. In case you...reactionscomments
Another Year With Hidradenitis Suppurativa...As we begin 2023, I can’t help but to reflect on my past and contemplate a future, like many people do during...reactionscomments
