FeaturedHave you been gaslit by health professionals?...I was diagnosed with HS 2 years ago by my old GP when I had a terrible flare up at the end of my pregnancy (at least 9 large excruciating...Reactions0reactionsComments6 repliesDiagnosis
Talking To My Partner About HS (Part 1)...You’d think I was about to tell my boyfriend I had a sixth toe or something going by how nervous I was to talk to him about my HS. For...Reactions0reactionsComments2 comments
The Burden I Carry Is Not Light: An Expression of the Emotional Weight of Hidradenitis Suppurativa...The burden I carry as a hidradenitis suppurativa patient (HS) is not light, it is dark. It's as if Dante's Inferno and the book of Revelations had a baby, and...Reactions0reactionsComments0 comments
Tumeric, garlic and ginger for hs...Hi, recently I have been searching the web and most hs sufferers suggest to try tumeric, garlic and ginger supplements to help with hs. I tried to give these remedies...Reactions0reactionsComments0 repliesDiet & NutritionTips & AdviceTriggers
Being Patient Along The Journey...Throughout my battle with hidradenitis suppurativa, I have learned that being patient along the journey is very important. Great uncertainly and a ton of ups and downs come when you’re...Reactions0reactionsComments0 comments
Breaking out while on meds...My diagnosis is about a year old. My Dr and I have diuretics, steroids, antibiotics, etc. I still break out on even antibiotics. I see a dermatologist this week. I'm...Reactions0reactionsComments2 repliesDiagnosis
Best Deodorant for HS...Hey All, My HS has now spread into my armpits, I was wondering whether deodorants weren't helping and making them more inflamed. Anyone have suggestions on the best deodorant that...Reactions0reactionsComments5 repliesFlares
Art Recipe: Acrylic Pour...Art is a great way to distract yourself from the pain. It also is a great way to document your Hidradenitis Suppurativa journey. Your style of art might change whether...Reactions0reactionsComments0 comments
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Helicopter Mom and HS...After my husband passed away, I became an overprotective parent constantly shielding my daughter from various situations. Although it was done with the purest of intentions, I had developed a...Reactions0reactionsComments0 comments
What Being Open About My Diagnosis Has Taught Me (Part 5)...In the final video of this series, I share how being open about my diagnosis helped to accept my current reality, but shape the life I desire. I encourage all...Reactions0reactionsComments0 comments
My Top 10 Favorite Substitutes...Hidradenitis suppurativa can be caused by many different things. Some people might flare from stress, anxiety, depression, or a hormonal imbalance, while others might flare from certain foods or beverages...Reactions0reactionsComments0 comments
My First Time Sharing...Hello... My name is Alicia and I got my first lump on the back of my neck at the age of 17. I am now 41 yrs old and I...Reactions0reactionsComments1 comments
Bath Products and HS...Hey Guys I love taking a relaxing bath, especially after a hard day. I also think it might be good to soak my HS flare ups. But I always worry...Reactions0reactionsComments3 replies
Products I Use To Help Manage My HS (Part 2)...Here's part two of my video series, Products I Use To Help Manage My HS. Thank you all for watching. I hope this helps you. 💜 In case you missed...Reactions0reactionsComments2 comments
What Being Open About My Diagnosis Has Taught Me (Part 4)...When I opened up about my diagnosis, I learned overtime that I no longer have to suffer in silence. This was really important because it taught me to develop my...Reactions0reactionsComments0 comments
Swimming Time Blues...I’ve got a couple of things that make me really want to jump in a pool. One of my co-morbidities to hidradenitis suppurativa is ankylosing spondylitis, and because it affects...Reactions0reactionsComments0 comments
What Being Open About My Diagnosis Has Taught Me (Part 3)...In the third video, we dive into how opening up about my diagnosis has helped me grow in confidence. Prior to growing in my confidence, I felt like I was...Reactions0reactionsComments0 comments