Never will be cured :(...Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also...reactions3comments
My HS Journey...My first memory of an HS lesion is burned into my brain: I’m a smiley bright-eyed, fair-haired girl, at school in about...reactions2comments
Living with HS (Part 2)...I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to...reactionscomments
The Burden I Carry Is Not Light: An Expression of the Emotional Weight of Hidradenitis Suppurativa...The burden I carry as a hidradenitis suppurativa patient (HS) is not light, it is dark. It's as if Dante's Inferno and...reactionscomments
19 Years of HS...I got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have...reactions1comment
How Does HS Affect Pregnant And Breastfeeding Women?...If painful bumps, boils, or pimples keep returning to embarrassing places on your body, it’s time to see a dermatologist, a doctor...
Being Patient Along The Journey...Throughout my battle with hidradenitis suppurativa, I have learned that being patient along the journey is very important. Great uncertainly and a...reactionscomments
Art Recipe: Acrylic Pour...Art is a great way to distract yourself from the pain. It also is a great way to document your Hidradenitis Suppurativa...reactionscomments
What Being Open About My Diagnosis Has Taught Me (Part 5)...In the final video of this series, I share how being open about my diagnosis helped to accept my current reality, but...reactionscomments
What Being Open About My Diagnosis Has Taught Me (Part 4)...When I opened up about my diagnosis, I learned overtime that I no longer have to suffer in silence. This was really...reactionscomments
What Being Open About My Diagnosis Has Taught Me (Part 3)...In the third video, we dive into how opening up about my diagnosis has helped me grow in confidence. Prior to growing...reactionscomments
Hidradenitis Suppurativa Wound Care...Managing the wounds of hidradenitis suppurativa (HS) can present its challenges. Wounds that occur in HS can be painful and embarrassing. They...
Therapy and Chronic Illness...You either hate or love therapy. Some days, it’s both. I have been in therapy off and on for 9 years, and...reactions1comment
Working A Warehouse Job With HS (Part 2)...In case you missed it, check out Part 1 of this series! Deciding to talk to my supervisor about my HS symptoms...reactionscomments
What Being Open About My Diagnosis Has Taught Me (Part 2)...In the second video of the series, I discuss how being transparent about my hidradenitis suppurativa diagnosis has helped others. Once I...reactionscomments
Working A Warehouse Job With HS (Part 1)...I remember the first time my supervisor asked me why I always walked funny. It wasn’t in a disrespectful way or anything...reactionscomments
Recipe for Art: Tree of Life...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity...reactions2comments
Effortless and No Guilt BBQ Chicken...This recipe is super easy to make and also gluten free, sugar free, and low carb! I make it twice a week...reactionscomments
Is Laughter The Best Medicine Or Is It Just An Old Cliché?...One of my most favorite morning regimes is to head out for a run in the park. As I inhale the crisp...reactionscomments
Living A Full Life Despite Your Diagnosis...In this video, I share my journey with hidradenitis suppurativa, and how I have navigated living a full life despite my HS...reactionscomments
