Navigating The Bad Days...This video is all about getting through the bad days and what keeps me going. I share some of the things have helped me navigate through some really dark days...Reactions0reactionsComments0 comments
Recipe for Art: Trouble Dolls...Sometimes during a flare or especially painful lesions, those of us with HS can be stuck in a loop of depression and inactivity. Art helps us to process our feelings...Reactions0reactionsComments0 comments
College Housing Accommodations: Bathrooms...Hi, This is my first time posting here, but I've been lurking for a bit and I really appreciate the advice. I've been having HS symptoms since I was 12...Reactions0reactionsComments4 repliesWork & EmploymentTips & Advice
How I Learned To Accept My Scars As A Masterpiece (Part 1)...“My scars help create the masterpiece that is me.” I begged my eyes to acknowledge my broken reflection in the mirror as these words echoed in my head willing me...Reactions0reactionsComments1 comments
Finding The Inner Warrior Within You...In this video, Chaz encourages other HS Warriors by sharing a story of a situation that helped him find his inner warrior. Through this experience, Chaz learned to not place...Reactions0reactionsComments0 comments
HS Caregivers...Do we have any caregivers here? Introduce yourself! We know you play an important role in caring for your loved one with HS....Reactions0reactionsComments0 repliesCaregiving
I've never met or spoken to anyone with HS...Really seeking conversation and friendship with others with HS...neon sign lol inbox me...Reactions0reactionsComments1 repliesCoping
Recipe for Art: Googly Eye Coaster...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings and...Reactions0reactionsComments0 comments
Shatece Haynes...Shatece Haynes is a freelance writer, content creator and HS advocate currently living in Illinois. Even though she started developing symptoms of hidradenitis suppurativa back in 2010, she didn’t receive...
In A Pool Of Blood...In case you missed it, check out Part 1 of this series, Complexities of Disease Management and Single Parenting. At first, I couldn’t really comprehend what was going on but...Reactions0reactionsComments7 comments
How Do I Know If My Cosmetics Are Safe to Use?...If live with hidradenitis suppurativa and have ever used cosmetics, you may wonder how the federal government makes sure these products are safe. You may also wonder what steps you...Reactions0reactionsComments0 comments
Getting Another Diagnosis with HS...HS is a grueling disease that has taught me so much. I was diagnosed when I was 17 years old and will soon be 27. Coming up on the 10...Reactions0reactionsComments0 comments
Toxic Positivity (Part 2)...In case you missed it, check out Part 1 of this series! Your resistance to only looking on the bright side is actually normal. Pushing down your feelings and pasting...Reactions0reactionsComments3 comments
How Chronic Boils Taught Me To Live Guilt-Free (Part 3)...In case you missed it, check out Parts 1 and 2 of this series! In learning to accept that my journey with HS is in fact not my fault, I...Reactions0reactionsComments0 comments
"I Won't Let HS Steal My..."...Calling all HS Warriors! Fill in the blank below and let us know what HS won't steal from YOU! I won't let HS steal my ________....Reactions0reactionsComments1 repliesAwareness
Completely new to HS...Hi everyone I'm completely new to this whole situation so bare with me 🤣 i have recently been diagnosed with hs and I am currently on antibiotics and a antiseptic...Reactions0reactionsComments4 repliesTips & AdviceNewly Diagnosed
Toxic Positivity (Part 1)...Maybe this scenario sounds familiar to you: you are standing in line at your favorite store, buying up all of their 3”x4” self-adhesive bandages they had out on the shelves...Reactions0reactionsComments2 comments
My Doctor Horror Story...In the early stages of my HS diagnosis, I put up with a lot from doctors. I was scared and unsure of what was happening with my body and so...Reactions0reactionsComments1 comments
my own method of treatment,part2...Tea Tree Oil Tea tree oil contains anti-inflammatory, antibacterial, antiseptic and antiviral properties that can successfully treat the problem of hidradenitis suppurativa. Materials Tea tree oil – a few drops...Reactions0reactionsComments3 repliesCopingTreatmentWound Care
my own method of treatment...Thanks to its antibacterial agents, apple cider vinegar can destroy the bacteria that causes hidradenitis suppurativa. In addition, the acidic attitude of apple cider vinegar makes it difficult for bacteria...Reactions0reactionsComments2 repliesWound CareTreatmentCoping