Dismissed and Denied...I had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...reactions2comments
Items I Keep In My HS Bugout Bag...Hello beautiful people! In todays video, I’ll be sharing some of my favorite items that I keep in my HS Bugout Bag. Please feel free to leave some comments and...reactions4comments
Do you consider HS a part of your identity?...The answer for me is yes. What about you??...reactions5repliesCopingMental Health
Allergic to Humira...My doc is trying off label treatment. I'm trying Otezla now. Anyone else with HS tried this and any results???...reactionsrepliesTreatment
Pilonidal Cyst – The Butt Kicker...Let me just start this by saying I’m not a trucker (otherwise known as a lorry driver in the UK). I can’t drive a manual transmission at all, and I...reactionscomments
Mixed Sprouts Dry Curry...Every Sunday, I would relish a bowl full of Khichadi, a one-pot dish made with rice and lentils accompanied by pickle and curd for lunch. But after I was diagnosed...reactionscomments
Loving the Summer Again...I was grateful when for college, I moved to a city that had a very long winter, as opposed to somewhere like Miami, where I would be forced to shed the...reactions1comment
Upper Arm Numbness & Pain...Hi, I have had HS since I was 13/14 and was diagnosed when I was 17. I’ve always had pain but recently for the past few months my right upper...reactions1replySleepFlaresPain
The Invisibility of Pain...Some people with hidradenitis suppurativa are able to manage their pain using over-the-counter or prescription pain medicines, but many others are not. Sometimes, pain cannot be fully controlled by medicine...reactions7comments
Thoughts on HS treatments...Hi guys, I am completely new to this forum, sat typing this at 1am as I don’t know what else to do. My name is Cat, I was diagnosed about...reactions4repliesTips & AdviceTreatment
The Obesity Bias: How Doctors Dismiss People Who Are Overweight...If you go to the doctor for a health issue or concern, or because you are in pain, you would expect a thorough exam to get to the root cause...reactionscomments
Tiredness and HS?...Hi all, I've been struggling with chronic fatigue ever since puberty, around the time when the HS started. I've had all tests done and nothing has ever come back explaining...reactions3repliesSleepSide EffectsTips & Advice
Stigma Surrounding HS...In this video, Chaz discusses the stigma around hidradenitis suppurativa and share why he tries to combat it. Chaz believes that HS Warriors, their community, and their medical teams can...reactions1comment
Warm Hug Apple Cake...I have been experimenting lately with alternative ingredients. Well, an alternative to me - I grew up with old-fashioned wheat flour, full butter, eggs from the chickens outside, you get...reactions3comments
Living with HS...I have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading...reactionscomments
How fast it the condition developing? How to stop it?...Hey, I cannot see any doctor for the next week and I try to self diagnose. I got my first armpit bump a few months ago and then it become...reactions1replyDiagnosis
General Mental Health Resources...Living with a mental health condition may pose many challenges. It requires coping, finding treatment, and managing the impact of the condition on family, friendships, and work. Stigma can make...
Getting an Inflectra (Remicade) Infusion...Starting a new medication always makes me anxious. When my Humira stopped being effective for me, my doctor recommended we begin Inflectra (the equivalent to Remicade). I was not sure...reactionscomments
HS ...I came on here and signed up for to get some answers about HS I even sent a message to customer services to get answers all I get is join...reactions2repliesDepressionDiagnosisAwareness
Drainage and women's undergarments ...Hello everyone, I'm new to this forum and looking for help. My adult daughter suffers with a myriad of autoimmune disorders and her HS is awful. She frequently has painful...reactions7repliesDrainageTips & Advice
