Recipe for Art: Tin Foil Stained Glass...Sometimes during a flare or especially painful lesions, those of us with HS can get stuck in a loop of depression and inactivity. Art can help us to process our...Reactions0reactionsComments0 comments
Having a Positive Mindset and Finding the Silver Lining...Managing a chronic disease has its challenges, and it can be difficult to cope or even find someone that understands what you are feeling and experiencing at any given moment...Reactions0reactionsComments0 comments
Tattoos & HS...Historically, tattoos have been around for thousands of years. They tell a story and can tell you everything about a person. I have always admired the intricate ink designs. I...Reactions0reactionsComments1 comments
Four Things I Would Tell My Younger Self About Living With HS...Hello beautiful people! Here is a video of what I would have told my younger self when I was originally diagnosed with hidradenitis suppurativa (HS). I hope you find this...Reactions0reactionsComments0 comments
OMG What Is That Smell?...The biggest issue that I find with people who have HS that may initially go unnoticed is the smell. We all know what I'm talking about... The smell that's a...Reactions0reactionsComments3 comments
Red Flags at the Doctor’s Office...Going to a new doctor is never easy and can be very nerve wracking, especially if you’ve had traumatic experiences in the past. Medical PTSD is real and can really...Reactions0reactionsComments0 comments
Rice Versus Wheat...The majority of South Indian cuisines are centered around rice or rice-based dishes. The soil, rain, and temperature are far more conducive for growing more rice than wheat. But that’s...Reactions0reactionsComments0 comments
Living With Hidradenitis Suppurativa, Am I Desirable?...What is desirability, and what makes us think we need to be desirable to others? Is it instinct? Is it our need to mate and find a partner? What is...Reactions0reactionsComments4 comments
I'm Not Angry, I Just Have Boundaries (Part 1)...Inevitably, there are going to be bad days with HS. And as much as I may hate that sometimes, it comes with the territory of having a chronic illness. During...Reactions0reactionsComments0 comments
Recipe for Art: Meditation Drawing (Lichen)...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...Reactions0reactionsComments0 comments
FeaturedWho is your most supportive person when you are dealing with HS?...Do you have at least one person to lean on when you are having a bad symptom day? How do they help get you through the rough times?...Reactions0reactionsComments10 repliesCopingFriends & FamilyIntimacy & Relationships
Pain Management for Hidradenitis Suppurativa...People who have hidradenitis suppurativa (HS) develop areas of damage, or lesions, on their skin. These bumps may become red and fill with pus. They may burst, drain and resolve...Reactions0reactionsComments4 comments
The Benefits of Online HS Communities...Before becoming part of the online hidradenitis suppurativa community, I really felt alone. I’ve said it before and I’ll say it again, HS isn’t the most pleasant thing to talk...Reactions0reactionsComments0 comments
Tamien Elder...Tamien Elder is a patient leader with a unique health journey who knows what it’s like to manage multiple health disruptions. Diagnosed with HS in her teenage years, followed by...
Recipe for Art: Coffee Filter Flowers...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings and...Reactions0reactionsComments0 comments
The Importance of Getting a Second Opinion ...It took me a long time to realize this, but just because someone has the prefix “Dr.” before their name, it doesn’t mean they’re going to necessarily help treat you...Reactions0reactionsComments0 comments
What Is Polycystic Ovary Syndrome?...Some people with hidradenitis suppurativa (HS) may also have polycystic ovary syndrome, or PCOS. When someone has 2 or more conditions at once, the conditions are called comorbidities. Having comorbidities...Reactions0reactionsComments0 comments
Learning To Love Myself With HS (Part 3)...In case you missed it, check out Parts 1 and 2 of this series! In addition to all I had to learn about my body to manage my HS, I...Reactions0reactionsComments1 comments
Hating Life...I’m having a hard time dealing with this. My “spots” are inflamed and I can’t walk. I’ve missed a week of work behind this , my birthday is tomorrow ...Reactions0reactionsComments6 repliesDepressionCopingMental Health
Gaslighting Before My Hidradenitis Suppurativa Diagnosis...Medical gaslighting is a hot topic now, as we become aware of how we are “handled” historically and currently as hidradenitis suppurativa patients. In the past – and that includes...Reactions0reactionsComments0 comments