Patient Assistance Programs - How You Might Still Be Able to Afford Biologics for HS (Part 1)...Maybe it feels like you had to trudge through some swamps and fight off airplane-sized mosquitos to finally get what you have been waiting for to treat your hidradenitis suppurativa:...reactionscomments
Is this HS?...In the 1990s, I discovered a nodule in my groin area about the size of a garbanzo bean. Terrified, I went to a doctor who brushed it off as nothing...reactions3replies
Dilemma and Resolution...After we were married, my husband and I moved to Africa on a work permit visa. It was my first time abroad and I was eager to explore the inner...reactionscomments
The Talk: Disclosing HS in Relationships...Talking about our condition can be embarrassing and often we avoid it like the bubonic plague. Often I wonder when the right time is to bring up the fact I...reactions3comments
15 Years with Hidradenitis Suppurativa (HS)...As 2023 approached, I realized this marked 15 years since my HS introduced itself like the most unwelcome of visitors. I first started having HS symptoms when I was 13...reactions12comments
Have you tried a black tea hot compress?...We are all about trading ideas for over the counter remedies. In case you didn’t know, when you have a sore throat, you can steep 4 bags of basic black...reactionsrepliesSymptomsTips & AdviceWound Care
How Selfless Service Saved Me From Drowning Into Self-Pity...During my formative years, I was told that donating a part of our savings to someone in need is considered a good deed. Every year, my mother would contribute a...reactionscomments
Maintaining a Social Attitude...I don’t know if anyone remembers that show, “The Love Boat,” but in my late 20s and early 30s I earned the nickname of Julie the Cruise Director. I used...reactions2comments
Childhood Trauma...I was 11 years old and unsure what was going on with me. I would get these painful lumps seemingly everywhere. It would be days, sometimes weeks, before the pain...reactions2comments
How Food Became My Enemy (Part 2)...In case you missed it, check out Part 1 of this series! To make a long story short, by eliminating foods like pork, beef, chicken, and dairy from my diet...reactionscomments
FeaturedScars...Hello all, I am new here. I was just diagnosed with this but I have been suffering with it since I was 5 or 6, I never had a name...reactions5replies
Let's Talk About Sex, Baby...Let’s be honest, starting a relationship with hidradenitis suppurativa can be hard, but having sex with hidradenitis suppurativa can be painful and embarrassing. Let’s set the stage, it's sexy time...reactions2comments
Racial Disparities in Healthcare...The term "racial disparities" refers to the ways that different racial groups are treated differently or have different outcomes. Racial disparities in healthcare are differences in care that harm certain...reactions1comment
My Disease Turned Me Into An Advocate For HS...I remember the first time I noticed something was wrong. I was only six or seven years old, and I had a small bump on my inner thigh. It didn't...reactions2comments
Why Me? (Food Edition)...Lately, I've found myself grieving my past life reminiscing over what was from food to relationships to a sense of comfort in my own body. The food restrictions I've decided...reactionscomments
The Confidence To Say Yes To Your Dreams (Part 1)...Following your dreams while living with hidradenitis suppurativa is complicated. What we plan to do today differs from what we can do tomorrow. Each day presents new challenges, which means...reactionscomments
Crystal Moore...Crystal Moore aka Crystal Summerz is a content creator and activist. She was diagnosed with Hidradenitis Suppativa better known as (HS) at 12 years old. Then diagnosed with ADHD at...
Self-Care for Hidradenitis Suppurativa...It’s really hard to feel good when you’re having a hidradenitis suppurativa flare. You feel emotionally and physically drained and in so much pain. That’s why self-care is so important...reactions1comment
Breakout areas...Hi, I’m new to the HS community and I am recently experiencing a severe breakout, however it’s also all over my upper thigh and knees…is this normal or should I...reactions3replies
Learning To Love Myself With HS (Part 4)...In case you missed it, check out Parts 1, 2, and 3 of this series! This one has been a little hard. As someone who used to wear sweaters and...reactions3comments
