Childhood Trauma...I was 11 years old and unsure what was going on with me. I would get these painful lumps seemingly everywhere. It would be days, sometimes weeks, before the pain...Reactions0reactionsComments2 comments
How Food Became My Enemy (Part 2)...In case you missed it, check out Part 1 of this series! To make a long story short, by eliminating foods like pork, beef, chicken, and dairy from my diet...Reactions0reactionsComments0 comments
FeaturedScars...Hello all, I am new here. I was just diagnosed with this but I have been suffering with it since I was 5 or 6, I never had a name...Reactions0reactionsComments5 replies
Let's Talk About Sex, Baby...Let’s be honest, starting a relationship with hidradenitis suppurativa can be hard, but having sex with hidradenitis suppurativa can be painful and embarrassing. Let’s set the stage, it's sexy time...Reactions0reactionsComments2 comments
Racial Disparities in Healthcare...The term "racial disparities" refers to the ways that different racial groups are treated differently or have different outcomes. Racial disparities in healthcare are differences in care that harm certain...Reactions0reactionsComments1 comments
My Disease Turned Me Into An Advocate For HS...I remember the first time I noticed something was wrong. I was only six or seven years old, and I had a small bump on my inner thigh. It didn't...Reactions0reactionsComments2 comments
Why Me? (Food Edition)...Lately, I've found myself grieving my past life reminiscing over what was from food to relationships to a sense of comfort in my own body. The food restrictions I've decided...Reactions0reactionsComments0 comments
The Confidence To Say Yes To Your Dreams (Part 1)...Following your dreams while living with hidradenitis suppurativa is complicated. What we plan to do today differs from what we can do tomorrow. Each day presents new challenges, which means...Reactions0reactionsComments0 comments
Crystal Moore...Crystal Moore aka Crystal Summerz is a content creator and activist. She was diagnosed with Hidradenitis Suppativa better known as (HS) at 12 years old. Then diagnosed with ADHD at...
Self-Care for Hidradenitis Suppurativa...It’s really hard to feel good when you’re having a hidradenitis suppurativa flare. You feel emotionally and physically drained and in so much pain. That’s why self-care is so important...Reactions0reactionsComments1 comments
Breakout areas...Hi, I’m new to the HS community and I am recently experiencing a severe breakout, however it’s also all over my upper thigh and knees…is this normal or should I...Reactions0reactionsComments3 replies
Learning To Love Myself With HS (Part 4)...In case you missed it, check out Parts 1, 2, and 3 of this series! This one has been a little hard. As someone who used to wear sweaters and...Reactions0reactionsComments3 comments
When were you diagnosed?...How old were you diagnosed with HS?...Reactions0reactionsComments5 repliesDiagnosis
I'm Not Angry, I Just Have Boundaries (Part 2)...In case you missed it, check out Part 1 of this series! When it comes to my family, I’ve found that setting boundaries can mean different things. Sure, there have...Reactions0reactionsComments0 comments
Online HS Friends...Have you been able to make new online friends through HSDisease.com or other online support groups where you are able to chat about daily life?...Reactions0reactionsComments0 repliesCopingFriends & FamilyIntimacy & Relationships
How COVID-19 Affected My HS...COVID-19 has changed our world. I was ordered to work from home in 2020 and I had a huge fear of catching COVID-19. I knew it could jeopardize my health...Reactions0reactionsComments0 comments
Bariatric Surgery for HS?...Hi All, I have had chronic HS since my early 20s with little to no reprieve. Constant flare ups, genetic prolonged QTs and fibromyalgia make me unable to exercise regularly...Reactions0reactionsComments0 repliesSurgeryTreatmentFlares
Recipe for Art: Bugle Bead Sun Catchers...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...Reactions0reactionsComments0 comments
Raising Awareness for HS with Men’s Health Magazine...Back in August of 2021, I had to honor of working with Men's Health Magazine. They helped to highlight my story as a male living with hidradenitis suppurativa. If you're...Reactions0reactionsComments0 comments
Has HS Been A Boon Or A Curse?...Tina is a sensitive and vulnerable child. She is a girl of extreme temperaments too and would often experience sever shift in moods. Right from her school days, she has...Reactions0reactionsComments0 comments
