New to site...Hi...I've been suffering with this since late teens, I'm now 52. Until recently I didn't even know this was an actual medical condition even though I been to the gp...reactions3repliesCopingNewly Diagnosed
How I manage my symptoms. (It has worked very well for 10 years now)...My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...reactions2repliesOTC MedicationTreatmentTips & Advice
HS and bras...Hello everyone I am new here. Although I've been living with this for years, I was only diagnosed recently. Depression is starting to set in because of having to wear...reactions3repliesCopingDepression
Any ideas on dealing with HS and incontinence pads?...I've had HS since I was in my teens. I've also been dealing with incontinence as an older adult. The moisture from wearing the pads and perspiring and no air...reactions3replies
HS and chronic folliculitis? ...Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...reactions1replyDermatologistFlaresTreatment
Dapsone - what to expect/testimonies?...Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...reactions1replyDermatologistTreatmentCoping
I Can’t Afford Prescription Medications for My Hidradenitis Suppurativa – What Do I Do? (Part 2)...In case you missed it, check out Part 1 of this series! How can we forget that Amazon has everything? I did some searching for a few of my medications...reactions2comments
I Can’t Afford Prescription Medications for My Hidradenitis Suppurativa – What Do I Do? (Part 1)...I’m nearly 50 (okay, about a year and a few months away from the big 5-0), and I was a sick kid who grew up to be a sick adult...reactions2comments
Hot or Cold Compress for HS flares?...I am new to the HS world and trying to get my head around this new monster in my life. I am considered a "late in life" onset...at 46. So...reactions4repliesTips & AdviceTreatmentNewly Diagnosed
Humira...I started 80mg of humira today for the first time for the HS. I went to the dermatologist to have the nurse help me. Anyways indidnt feel any pinch anything...reactions1reply
Navigating the World of Dating with Hidradenitis Suppurativa (Part One)...Dating is an exhilarating and challenging journey that involves run-ins with vulnerability, self-discovery, and acceptance. As someone living with hidradenitis suppurativa (HS), the dating landscape presents unique hurdles. I've realized...reactionscomments
Get to the root of hs...For the first time is 8 years I am lesion free. My hs disease state was related to ingesting certain foods. I purchased a food sensitivity kit online (Everlywell) that...reactions7replies
Thoughts on weather and climate affecting HS flares?...Hi all, With reading how HS can be flared by hot and humid climates/weather, I was wondering if anyone had experience living in a desert or dry/arid climate with HS?...reactions2repliesWeatherFlaresTravel
Patient Assistance Programs - How You Might Still Be Able to Afford Biologics for HS (Part 2)...In case you missed it, check out Part 1 of this series! There is a trend that has started recently, and that is they run credit reports to see my...reactionscomments
How do you describe yourself?...When introducing yourself to new acquaintances in a casual setting, do you lead with your health challenges, or do you first cover your hobbies and interests?...reactionsrepliesFriends & FamilyCopingMental Health
Fully Accepting My HS (Part 1)...I have had HS for about about 12 years and I think I can confidently say that I had HS for at least half of that time before fully accepting...reactionscomments
Putting On A Brave Face...I was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each year, each year getting harder to be compliant...reactions2comments
It’s Complicated! Comorbidities and Hidradenitis Suppurativa...I lead an incredibly complex life for someone who is a stay-at-home patient. I’m not a mom of children nor of fur babies. 'My medical conditions are my children' is...reactionscomments
HS Awareness Week 2023: It Takes All Kinds...Welcome to Hidradenitis Suppurativa Awareness Week 2023! While HS warriors work tirelessly to support one another and bring awareness to this condition all year round, we believe it’s especially important...reactions2comments
You Are Not Alone...You have hidradenitis suppurativa You have an uncontrollable illness You have a disease that you were born with You have a condition that isn’t your fault You have to live...reactionscomments
