I'm Not Angry, I Just Have Boundaries (Part 1)...Inevitably, there are going to be bad days with HS. And as much as I may hate that sometimes, it comes with the territory of having a chronic illness. During...reactionscomments
Recipe for Art: Meditation Drawing (Lichen)...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...reactionscomments
FeaturedActive todayWho is your most supportive person when you are dealing with HS?...Do you have at least one person to lean on when you are having a bad symptom day? How do they help get you through the rough times?...reactions19repliesCopingFriends & FamilyIntimacy & Relationships
Pain Management for Hidradenitis Suppurativa...People who have hidradenitis suppurativa (HS) develop areas of damage, or lesions, on their skin. These bumps may become red and fill with pus. They may burst, drain and resolve...reactions6comments
The Benefits of Online HS Communities...Before becoming part of the online hidradenitis suppurativa community, I really felt alone. I’ve said it before and I’ll say it again, HS isn’t the most pleasant thing to talk...reactionscomments
Tamien Elder...Tamien Elder is a patient leader with a unique health journey who knows what it’s like to manage multiple health disruptions. Diagnosed with HS in her teenage years, followed by...
Recipe for Art: Coffee Filter Flowers...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings and...reactionscomments
The Importance of Getting a Second Opinion ...It took me a long time to realize this, but just because someone has the prefix “Dr.” before their name, it doesn’t mean they’re going to necessarily help treat you...reactionscomments
What Is Polycystic Ovary Syndrome?...Some people with hidradenitis suppurativa (HS) may also have polycystic ovary syndrome, or PCOS. When someone has 2 or more conditions at once, the conditions are called comorbidities. Having comorbidities...reactionscomments
Learning To Love Myself With HS (Part 3)...In case you missed it, check out Parts 1 and 2 of this series! In addition to all I had to learn about my body to manage my HS, I...reactions1comment
Hating Life...I’m having a hard time dealing with this. My “spots” are inflamed and I can’t walk. I’ve missed a week of work behind this , my birthday is tomorrow ...reactions6repliesDepressionCopingMental Health
Gaslighting Before My Hidradenitis Suppurativa Diagnosis...Medical gaslighting is a hot topic now, as we become aware of how we are “handled” historically and currently as hidradenitis suppurativa patients. In the past – and that includes...reactionscomments
How I Manage the Pain Associated with HS...It’s no lie that the pain associated with HS can be unbearable and agonizing. For those of you with HS, you know exactly what I mean. For those of you...reactionscomments
Taking Ownership Of Your Diagnosis (Part 4)...In the final video of this four part series, we discuss what it means to get knowledge, but to not become overwhelmed. It’s important to take steps toward obtaining information...reactionscomments
Do you have access to mental health counseling?...Something that comes up often is the need for someone to talk to, but often there are barriers. Do you have access to counseling, including situations where you might have...reactionsrepliesMental HealthAwarenessCoping
Chronic Illness In Your Twenties...As a 20-something woman, my life is expected to look a certain way. There is a certain Sex-and-the-City-esque romanticization of being in your 20’s. People think you go out partying...reactions4comments
Non-Toxic Cleaning for Hidradenitis Suppurativa (Part 1)...I am huffing and puffing and wiping some dew drops off of my brow. Now it’s time for a water break. Okay, I’m just 30 minutes in, but I know...reactionscomments
What Products Help You Manage HS?...What products help you manage HS? Are there certain items you keep with you at all times? Share with us in the thread below!...reactionsrepliesTips & Advice
Comorbidities & Pain with HS...Many people living with HS are also managing other comorbidities. Do you have any other health challenges in addition to HS? Does that impact your HS pain? 💜...reactions2repliesDiagnosisPain
The Anti-Inflammatory Diet...Inflammation is 1 way our bodies respond to infection or injury. We want our immune system to protect us from foreign invaders. But sometimes, inflammation can spread throughout the body...reactionscomments
