One Month Check-Up With My New Dermatologist...Hello beautiful people, in todays video, I speak about my recent one moth check up with my new dermatologist. To say the least, things are looking good! Thank you all...Reactions0reactionsComments0 comments
Self-Care Tips For People With HS...Self-care is important no matter who you are but having a chronic illness means taking extra steps to ensure you're taken care of due to the toll it may have...Reactions0reactionsComments0 comments
Spironolactone, doxycycline (for rosacea),metformin...So my dermo prescribed metformin(I am not diabetic, spironolactone (I've been taking that since Aug 2022 ) and anyway my period is late and I'm for sure not pregnant. Has...Reactions0reactionsComments1 replies
Taking Ownership Of Your Diagnosis (Part 2)...In the second video in this series, I discuss how important it is to take a step. I encourage HS warriors to just take a single step and you’ll be...Reactions0reactionsComments0 comments
How I Budget Money With A Chronic Illness...Aside from the physical challenges of having a chronic illness, the financial challenges are one of my biggest stressors. I am lucky to have a full-time job with great benefits...Reactions0reactionsComments2 comments
Taking Back Bath Time...When I was younger, I used to love bath time. I would bring in my dolls and toys, swim around (well, swim around as much as you possibly could in...Reactions0reactionsComments0 comments
Will You Take Our 2023 In America Survey?...**Survey closed** It's unknown how many people live with HS, but we do know HS impacts the social lives, employment opportunities, and emotional well-being of people living with the condition...Reactions0reactionsComments1 repliesResearch & Clinical Trials
Recipe for Art - Wax Stained Glass...Sometimes, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings and reprogram our brains better than any marathon...Reactions0reactionsComments0 comments
You all realize it's Autoimmune ...Fat may contribute but doesn't cause. The pores aren't actually clogging from the outside. Your immune system is telling your white blood cells to attack your own skin. Until words...Reactions0reactionsComments7 replies
TV Shows That Will Make You Laugh When You're Feeling Down...As a child, I found peace in watching television, for the fantasy, and the investment in other people's lives that were not my own. These 30 to 60-minute increments of...Reactions0reactionsComments0 comments
Asking for a Friend - Making New Connections as a Chronic Disease Patient...Who is ready for some math? I know, I know, you told yourself that there is no way you needed that Algebra II after the final that you passed in...Reactions0reactionsComments3 comments
Products I Use To Help Manage My HS (Part 3)...In this video, Joey shows us more of his favorite items that help him properly manage his hidradenitis suppurativa. In case you missed it, check out Parts 1 and 2...Reactions0reactionsComments0 comments
Another Year With Hidradenitis Suppurativa...As we begin 2023, I can’t help but to reflect on my past and contemplate a future, like many people do during this time. I am currently ending 2022 with...Reactions0reactionsComments0 comments
When The Body Becomes A Battleground...On February 24th, 2022, the bloody battle between Russia and Ukraine had begun. Since then, thousands of lives have been lost and more than a third of Ukraine’s population disrupted...Reactions0reactionsComments0 comments
Metformin and HS...I went to my dermatologist the other day and she gave me a steroid shot under each armpit where my HS is bad . How long will the steroid injection...Reactions0reactionsComments5 replies
How My Pet Helps Me Cope With HS...In this video, Joey gives us three examples of how his pet helps him cope with hidradenitis suppurativa. Please leave some comments below letting Joey know how your pet helps...Reactions0reactionsComments4 comments
Learning To Love Myself With HS (Part 1)...It’s been quite the journey navigating HS. There’s a lot that it seems like HS can take away from you: limiting your mobility, dealing with the intense pain, managing drainage...Reactions0reactionsComments1 comments
Our Foray Into Homeopathy...Medicines come from a variety of sources. Some are developed from substances that are found in nature. Others are byproducts of organisms, a few are biologically engineered, some are sourced...Reactions0reactionsComments0 comments
What HS Won’t Steal (Part 3)...In the final video of this series, I share how my hidradenitis suppurativa won’t steal my outlook and mindset. This declaration and way of life has been a gradual thing...Reactions0reactionsComments0 comments