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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Talking to friends about HS

I have been realising recently that I tend to downplay my symptoms to my friends & family as I don’t like letting...

Do you resonate with the term 'rare disease' ?

Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was...

Thread of Positivity: Show me your pets!

I wanted to start a thread of positivity so people who were feeling down had somewhere to go to cheer themselves up...

Surgery

Surgery of any kind can bring on a host of emotions. Have you had surgery? What did you experience? Are you considering...

Body Image

I've been struggling a lot lately with accepting my body as it is now. Of course, I have an idea of all...

Chaga mushroom?

I was just wondering, does anyone have any personal experience using chaga mushroom for their inflammation? It comes in tea, powder, and...

How do you plan to beat the heat this summer?

Warmer weather is complicated for those living with HS. While we may want to enjoy the warmer months, heat can trigger flares...

What type of doctor should I see for my HS?

What's the best specialist to see? Or should I just see my GP for my care?...

Exercise & Weight Loss

Finding a workout plan that works for you can be challenging, especially living with chronic pain. Have you found an exercise program...

Uncommon HS Flare Areas?

I know the armpits, groin, buttocks, breasts, and stomach are really common flare areas, but do you get outbreaks in areas not...

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