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Forums

Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

What are your tips for finding a good dermatologist?

Share your tips with fellow community members! If you haven’t found a good specialist, what challenges have you faced?...

How I manage my symptoms. (It has worked very well for 10 years now)

My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...

Mental Health

Mental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...

Any ideas on dealing with HS and incontinence pads?

I've had HS since I was in my teens. I've also been dealing with incontinence as an older adult. The moisture from wearing the pads and perspiring and no air...

HS and bras

Hello everyone I am new here. Although I've been living with this for years, I was only diagnosed recently. Depression is starting to set in because of having to wear...

Upper Arm Numbness & Pain

Hi, I have had HS since I was 13/14 and was diagnosed when I was 17. I’ve always had pain but recently for the past few months my right upper...

HS Photos

Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...

HS and chronic folliculitis?

Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...

Dapsone - what to expect/testimonies?

Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...

Get to the root of hs

For the first time is 8 years I am lesion free. My hs disease state was related to ingesting certain foods. I purchased a food sensitivity kit online (Everlywell) that...

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