Blue light therapy...Hi. I was diagnosed with HS recently after having the condition for a few years (but didn't know it had a name) I only get the occasional flare up in...reactions1replyNewly DiagnosedScaringWound Care
I Cured My Lifelong HS...I’m now 53 and have just recently stumbled on HS and started reading it and it was a true revelation.. This was the answer to the biggest mystery of my...reactions10repliesDermatologist
I Found My (Hidradenitis Suppurativa) People...I’ve always been an oddball. I didn’t quite fit in with the farm kids when my family moved from a big city of 1.5 million to a town of 300...reactionscomments
Helping with flare ups ...Hi All. New hear but been suffering with HS since I was roughly 15 (now 34 diagnosed at 19) very, very recently after what is years of not knowing why...reactions1replyDiet & Nutrition
Work Life Juggle...I started experiencing hidradenitis suppurativa not even 3 years ago now. I am 23 going on 24 and currently have 7 painful open sores in my groin area, all of...reactions2comments
Does surgery help?...Adding surgery to a biologic, does that help in any way? Do they return quickly? Is surgery even worth it?...reactions3repliesDrainageSurgeryTips & Advice
How do you juggle the pain with work?...Hi, I’m new here. First post. Anyways, I was properly diagnosed about 4 months ago when I had one burst in my groin area (it’s actually still open but they...reactions3repliesDepressionInsurance & DisabilityWork & Employment
Has anyone (UK) tried going private for treatment?...Hi there, I’m moving to the UK (Liverpool) and wondered if anyone had gone for private treatment for HS and had any joy? Thanks...reactions2repliesDermatologistTreatmentTips & Advice
Please Don’t Make Me Feel Guilty for Having My Triggers...As I type this, my hidradenitis suppurativa is going haywire. After a few months of doing great, I now have multiple flares on my stomach, inner thigh, and near my...reactions2comments
Going vegan cured me...I went vegan 10 years ago to help recovery times after all night raving in my 40s. I'd had six surgeries for HS before that, I've had none since, and...reactions3repliesDiet & Nutrition
diatomaceous Earth food grade ...I was desperate for a way to stop the crazy sweating and pain from my pits. I was having flares every 15 days. I impulsively bought some diatomaceous earth powder...reactions1reply
What scrubbers do you use when taking a shower? ...I have used many things and I find loofas case irritation and lead to a flare up....reactions1replyFlaresCaregiving
Has anyone had boils on the scalp and suffered severe hair loss?...Would like to discuss...reactions1replyFlares
Elimination Diet...Hidradenitis suppativa is a chronic skin disease which causes inflamed lesions sort of like boils on the skin. Many people on the internet will say they have a magic cure...reactionscomments
Please Help :'(...Hiya :) I need advice please. I have been diagnosed with fibromyalgia & endometriosis. I'm currently on the waiting list for an official diagnosis of hs. I'm currently on no...reactions1reply
Traveling Abroad with HS...I’m on a long holiday, supposed to be having the time of my life- just arrived in New Zealand today and am having such a bad groin flare up that...reactions1replyDepression
Where does everybody suffer? ...So I have been suffering badly around my whole body, but it would be nice to see if others suffer in certain places such as the face and back. As...reactions1replyCopingDepression
Side effects from anesthesia from surgery...I had a lower penectomy done this spring to remove abscesses. I was feeling great, healing well for two months and then my bowels and digestive system almost shut down...reactions1replySide EffectsSurgeryTriggers
Hidradenitis Suppurativa and the Lymphatic System...Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful, swollen lumps and tunnels under the skin. It usually affects areas of the body with hair follicles, such as...reactionscomments
Feeling severly ill...Hello. I am 44 and have not been diagnosed but i started getting bumps on my head at 18 while in the military. Now i have cysts or boils in...reactions16repliesCopingDermatologistDiagnosis
