Hot or Cold Compress for HS flares?...I am new to the HS world and trying to get my head around this new monster in my life. I am considered a "late in life" onset...at 46. So...Reactions0reactionsComments4 repliesTips & AdviceTreatmentNewly Diagnosed
Humira...I started 80mg of humira today for the first time for the HS. I went to the dermatologist to have the nurse help me. Anyways indidnt feel any pinch anything...Reactions0reactionsComments1 replies
Navigating the World of Dating with Hidradenitis Suppurativa (Part One)...Dating is an exhilarating and challenging journey that involves run-ins with vulnerability, self-discovery, and acceptance. As someone living with hidradenitis suppurativa (HS), the dating landscape presents unique hurdles. I've realized...Reactions0reactionsComments0 comments
Get to the root of hs...For the first time is 8 years I am lesion free. My hs disease state was related to ingesting certain foods. I purchased a food sensitivity kit online (Everlywell) that...Reactions0reactionsComments7 replies
Thoughts on weather and climate affecting HS flares?...Hi all, With reading how HS can be flared by hot and humid climates/weather, I was wondering if anyone had experience living in a desert or dry/arid climate with HS?...Reactions0reactionsComments2 repliesWeatherFlaresTravel
Patient Assistance Programs - How You Might Still Be Able to Afford Biologics for HS (Part 2)...In case you missed it, check out Part 1 of this series! There is a trend that has started recently, and that is they run credit reports to see my...Reactions0reactionsComments0 comments
How do you describe yourself?...When introducing yourself to new acquaintances in a casual setting, do you lead with your health challenges, or do you first cover your hobbies and interests?...Reactions0reactionsComments0 repliesFriends & FamilyCopingMental Health
Fully Accepting My HS (Part 1)...I have had HS for about about 12 years and I think I can confidently say that I had HS for at least half of that time before fully accepting...Reactions0reactionsComments0 comments
Putting On A Brave Face...I was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each year, each year getting harder to be compliant...Reactions0reactionsComments2 comments
It’s Complicated! Comorbidities and Hidradenitis Suppurativa...I lead an incredibly complex life for someone who is a stay-at-home patient. I’m not a mom of children nor of fur babies. 'My medical conditions are my children' is...Reactions0reactionsComments0 comments
HS Awareness Week 2023: It Takes All Kinds...Welcome to Hidradenitis Suppurativa Awareness Week 2023! While HS warriors work tirelessly to support one another and bring awareness to this condition all year round, we believe it’s especially important...Reactions0reactionsComments2 comments
You Are Not Alone...You have hidradenitis suppurativa You have an uncontrollable illness You have a disease that you were born with You have a condition that isn’t your fault You have to live...Reactions0reactionsComments0 comments
Patient Assistance Programs - How You Might Still Be Able to Afford Biologics for HS (Part 1)...Maybe it feels like you had to trudge through some swamps and fight off airplane-sized mosquitos to finally get what you have been waiting for to treat your hidradenitis suppurativa:...Reactions0reactionsComments0 comments
Is this HS?...In the 1990s, I discovered a nodule in my groin area about the size of a garbanzo bean. Terrified, I went to a doctor who brushed it off as nothing...Reactions0reactionsComments3 replies
Dilemma and Resolution...After we were married, my husband and I moved to Africa on a work permit visa. It was my first time abroad and I was eager to explore the inner...Reactions0reactionsComments0 comments
The Talk: Disclosing HS in Relationships...Talking about our condition can be embarrassing and often we avoid it like the bubonic plague. Often I wonder when the right time is to bring up the fact I...Reactions0reactionsComments3 comments
15 Years with Hidradenitis Suppurativa (HS)...As 2023 approached, I realized this marked 15 years since my HS introduced itself like the most unwelcome of visitors. I first started having HS symptoms when I was 13...Reactions0reactionsComments9 comments
Have you tried a black tea hot compress?...We are all about trading ideas for over the counter remedies. In case you didn’t know, when you have a sore throat, you can steep 4 bags of basic black...Reactions0reactionsComments0 repliesTips & AdviceSymptomsWound Care
How Selfless Service Saved Me From Drowning Into Self-Pity...During my formative years, I was told that donating a part of our savings to someone in need is considered a good deed. Every year, my mother would contribute a...Reactions0reactionsComments0 comments
Maintaining a Social Attitude...I don’t know if anyone remembers that show, “The Love Boat,” but in my late 20s and early 30s I earned the nickname of Julie the Cruise Director. I used...Reactions0reactionsComments2 comments
