Living with HSHi. My name's Jennifer. I'm 41 years old. I got diagnosed about 10 years ago with HS and I just had a...reactions1comment
Partial Mastectomy Due to HSI’ve been an HS warrior for over 25 years. I went undiagnosed for years. In 2024, I was diagnosed after many years...reactions1comment
HS Flared, I Panicked, ChatGPT DeliveredAfter a much-needed vacation, I was expecting to come home relaxed and refreshed. Instead, I walked through my front door and straight...reactionscomments
HS and FamilyI’m submitting this for my 23-year- old son who is also autistic. His symptoms began when he was in junior high school...reactions2comments
L- Lysine for HS DiseaseI've been taking 1000 mg of L- Lysine daily! I haven't had a big flare since! It is for skin and tissue...reactions1comment
Learning to Heal: My Journey With HS Disease and Self-AcceptanceLiving with hidradenitis suppurativa hasn’t been easy. At first, I didn’t even understand what was happening to my body — just that...reactionscomments
Hidradenitis Suppurativa is a MonsterHS has taken a lot of physical glory. I'm out of shape and tired throughout the majority of the day, unless I...reactions1comment
Accidentally Ate Dairy: HS ReturnedI went vegan 11 years ago. Fiver years later I thought, "Hang on, I haven't had to have a 7th HS surgery,"...reactions1comment
Castor oilI’ve struggled with HS disease for 25 years, since my first pregnancy. Sometimes it’s better and sometimes it’s worse. Now I’ve got...reactions9comments
Work Life JuggleI started experiencing hidradenitis suppurativa not even 3 years ago now. I am 23 going on 24 and currently have 7 painful...reactions2comments
Putting On A Brave FaceI was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each...reactions2comments
My Disease Turned Me Into An Advocate For HSI remember the first time I noticed something was wrong. I was only six or seven years old, and I had a...reactions2comments
Living with Stage 3I’ve had boils or lesions since I was a teen but recently was diagnosed with HS. And it was Stage 3. Living...reactions3comments
Always Seems to Be SomethingI really don’t know exactly when HS symptoms presented itself, but it was sometime in high school for me. I am 34...reactions4comments
Losing All HopeWhen I was a teenager sometime after I hit puberty I started to get “boils” all the time or at least that’s...reactions5comments
My First Time SharingHello... My name is Alicia and I got my first lump on the back of my neck at the age of 17...reactions1comment
19 Years of HSI got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have...reactions1comment
My HS JourneyI first started experiencing symptoms of hidradenitis suppurativa around the age of 12. I'm now 32. It was very painful and confusing...reactions2comments
Living With Hidradenitis SuppurativaMy name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old...reactions1comment
Never will be cured :(Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also...reactions3comments
