The Blue Light Treatment...It took me nine years to get my diagnosis of HS. By the time I did, I was wavering between stage I and II, and the majority of my activity...reactionscomments
Dating and relationships...I want to hear your stories about dating. Is it difficult now or has it always been difficult to navigate? What are the things you wish could change? What feels...reactionsrepliesIntimacy & RelationshipsTips & AdviceMental Health
Medical Trauma...Has anyone researched ways to connect back to the body after medical trauma? I wonder how the research could help HS patients especially because we deal with medical trauma sometimes...reactions3repliesTips & AdviceTreatmentMental Health
Ways To Handle A New HS Diagnosis (Part 1)...In this video, Chaz discusses the day he received his hidradenitis suppurativa diagnosis. He talks about his emotions, feelings, and his overall experience from that day. Check out Parts 2...reactions1comment
Missteps and Misdiagnoses (Part 1)...I first noticed it in May of my senior year of high school. A small, purple-ish, veiny bump had emerged from my right armpit. It was squarely in the middle...reactions1comment
🚩🚩 Red Flags 🚩🚩...What are some red flags in healthcare providers?...reactions6repliesHealthcare Team
Mental Health...Mental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...reactions3repliesDepression
The Mental Labor of Chronic Illness...When I was 17 years old, I got my HS diagnosis after 4 years of painful, recurring abscesses. Little did I know this would be the beginning of a lifelong...reactionscomments
IPL Success...I’ve had HS since around age 11 (now 16). I have tried antibiotics - didn’t work; AIP diet- made me extremely weak + using antibacterial washes etc. none of these...reactions1replyTips & AdviceTreatment
What Do Food Labels Mean?...A food label can tell you a lot about what you are eating. It shows the number of calories and serving sizes of different foods and provides a breakdown of...reactionscomments
Friendships & HS (Part 1)...How do you talk about what we go through with friends and family? How has HS affected your relationship and friendships? Has hidradenitis suppurativa impacted your personal relationships? As someone...reactions1comment
Hs in your hair and possible hair extensions....Hi! I’m sorry if this is a silly question but I get he slightly in my scalp. Like some bumps with hurt or some scabs will form it’s not horrible...reactions2repliesCopingFlares
Painsomnia: How to Build a Healthy Sleep Routine Around the Pain of HS...You’ve probably been there: Tossing and turning, desperate for sleep but in too much pain to do so. Sleep hygiene is an important part of physical and mental health, but...reactions1comment
Where Do I Start? How to Share Your Hidradenitis Suppurativa Story..."I want to share my story but don't know how to start." If this sounds like you, you are not alone. We have heard people in the hidradenitis suppurativa (HS)...reactions3comments
Mental Health...How do you take care of your mental health?...reactions3repliesTips & AdviceCopingDepression
Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life Impact...Hidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to manage, painful, and embarrassing. We asked about day-to-day...reactionscomments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis Suppurativa...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Isela, and she shared how important it is...reactionscomments
HS worse after pregnancy...Hi All, I was recently diagnosed with HS, my flare ups tend to happen under and on the sides of my breast, but I also get flare ups between my...reactionsrepliesCopingDepression
A Quick Update!...Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the time to explain what’s been going on with...reactions2comments
Daily hygiene questions ...My question is how do you handle daily hygiene? I saw the home treatments section but this question is more about cleaning. I am fairly new to the diagnosis and...reactions11replies
