Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life Impact...Hidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to manage, painful, and embarrassing. We asked about day-to-day...reactionscomments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis Suppurativa...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Isela, and she shared how important it is...reactionscomments
HS worse after pregnancy...Hi All, I was recently diagnosed with HS, my flare ups tend to happen under and on the sides of my breast, but I also get flare ups between my...reactionsrepliesCopingDepression
A Quick Update!...Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the time to explain what’s been going on with...reactions2comments
Daily hygiene questions ...My question is how do you handle daily hygiene? I saw the home treatments section but this question is more about cleaning. I am fairly new to the diagnosis and...reactions11replies
Ask the Advocate: Community & Advocacy...Finding community has been a source of strength and inspiration for so many folks with hidradenitis suppurativa (HS). Finally, a space where we speak the same language, people get what...reactionscomments
Letting Go Of Shame: Alice's Journey Opening Up About Her HS...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Alice, and she shared how she's learned to...reactionscomments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)...Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help. You deserve support and healing, and I promise...reactionscomments
Ask the Advocate: Wound Care & Home Remedies...Managing hidradenitis suppurativa (HS) wounds can be challenging. What might work for one HS warrior might not work for another. It is a balancing act that takes patience, perseverance, and...reactionscomments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Kristen, and she shared how she manages her...reactionscomments
Red Flags in Healthcare Providers: When Do I Say 'No?'...Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and countless other nurses and medical practitioners. Through experience...reactions1comment
Pomegranate Spritzer...The heat is here and that means we all could use something refreshing to cool us down. As HS patients I know we have to sacrifice a lot of the...reactions4comments
Embracing Change: Kim's Journey With Hidradenitis Suppurativa...Editor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews...reactionscomments
Doctors for Hidradenitis Suppurativa...What qualities do you look for in a doctor?...reactions13repliesHealthcare Team
A Real Unicorn (Doctor): Part 2...In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try the topical cream, but because of one of...reactions14comments
Meera Thirtha...Meera Thirtha is a single mother and lives in India. When she was in her late thirties her husband passed away. With an aging mother and a young daughter to...
Travelling with HS...Hi guys! I'm off to Germany next week and I'm wondering do any of you guys have any tips and tricks on travelling with HS?? I'd love to hear. What...reactions1replyTravel
A Real Unicorn (Doctor): Part 1...Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you lump all of these together, they are comorbidities...reactions6comments
Overcoming Adversity: Hayley's Journey to Acceptance...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Hayley and she shared why she has chosen...reactionscomments
Dealing with the physical and mental toll...I am looking for some support. I've had hs for 15 years but only got diagnosed and treated for about 6 months now. I have severe anxiety and depression....reactions4repliesDepressionCopingCaregiving
