Finding Joy While Living With Hidradenitis Suppurativa...As someone who lives with a debilitating chronic illness, it is important for me to recognize what brings me joy and make time to do that as much as possible...Reactions0reactionsComments1 comments
Just got diagnosed, is my life doomed? ...Hi, everyone. I'm a 22 year old woman from India. My inner thighs have been dark ever since I can remember. I got facial acne when I was 11, which...Reactions0reactionsComments6 repliesMental HealthSymptomsTips & Advice
HS: A Stubborn Lifelong Partner...Oh HS, some days I thank you for shaping me into the woman I am, some days I kind of forget you exist. Today, I despise you! You currently have...Reactions0reactionsComments0 comments
Keep Calm and Spoon On...Have you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance that you may consider yourself a spoonie or relate...Reactions0reactionsComments0 comments
Allopathic and Holistic and Homeopathic, Oh My! How I Use All Forms Of Medicine To Help My HS (Part 2)...In case you missed it, check out Part 1 of this series! Holistic care is defined by the Oxford dictionary as “characterized by the treatment of the whole person, taking...Reactions0reactionsComments0 comments
Hidradenitis Suppurativa Lesions and Biofilms...I'm going to include this article from the NIH; the abstract does a fairly good job of outlining why biofilms may be a real concern in trying to treat HS...Reactions0reactionsComments4 repliesWound CareTreatmentDermatologist
Anti-Inflammatory Greens...Greens are a staple in every Black family that I know! Greens are warm, cozy, and go great with cornbread or black-eyed peas with a dash of hot sauce (AIP...Reactions0reactionsComments0 comments
Become an HSDisease.com Health Leader!...Would you like to share your experience with the hidradenitis suppurativa community and help others who are also living with this diagnosis? We are looking to add new voices to...Reactions0reactionsComments0 comments
Chelsea Freund...Chelsea is like many patients with autoimmune diseases; where one lurks, others tag along as well. She was diagnosed with HS in 2017 after struggling and having symptoms for 9...
Loving Someone With Chronic Pain...Editor’s Note: This article was originally shared by our sister site, Migraine.com, and was written by Amanda Workman. This is one of those articles intended for the ones who love...Reactions0reactionsComments0 comments
Allopathic, Holistic, and Homeopathic, Oh My! How I Use All Forms Of Medicine To Help My HS (Part 1)...Doctors, naturopaths, functional medicine, holistic care - what is the difference and how can you use all forms of healing to your advantage? In this series, I’m going to define...Reactions0reactionsComments0 comments
Talking to friends about HS...I have been realising recently that I tend to downplay my symptoms to my friends & family as I don’t like letting them down when I cancel plans? Anyone else...Reactions0reactionsComments3 repliesCopingAwareness
HS & Ink: How To Safely Get Tattooed When You Have HS...As someone who came from a long line of individuals with tattoos (my dad, all of my siblings, many of my aunts and uncles, cousins, you name it!), I was...Reactions0reactionsComments5 comments
Mandira Harinath...Mandira Harinath is a 32-year-old freelance writer from India. She likes to write about topics related to health, nutrition, and lifestyle. Raised by a single mother and maternal grandmother, Mandira...
Ask the Advocate: Diagnosis...For so many of our HS warriors, the road to diagnosis is long and involves many misdiagnoses. In fact, on average, it takes people about 7 years to get an...Reactions0reactionsComments4 comments
Weird scar?...I had a small one in groin area two years ago. It was right where the elastic part of my underwear were on inner thigh/groin area. I used heat compress...Reactions0reactionsComments5 repliesScaring
Living With A Fistula - A Literal Pain In The Butt!!...Fistulas, a literal pain in the butt. If you haven't heard of a fistula don't worry, neither did I until I, unfortunately, was diagnosed with one. Let's talk about what...Reactions0reactionsComments3 comments
Public Assistance...Being officially disabled, according to the U.S. government’s definition and designation, is tricky. People who haven’t had to deal with disability don’t know that even that is divided into two...Reactions0reactionsComments4 comments
HS & Depression Part 2: Tips To Deal With Depression During A Flare...In case you missed it, check out Part 1 of this series! Depression and HS are a tough combination. Dealing with the physical pain of HS and the emotional anguish...Reactions0reactionsComments2 comments
Community Views: What I Wish Others Knew About Hidradenitis Suppurativa...Hidradenitis suppurativa (HS) can cause symptoms that are painful and embarrassing. Itchy or painful bumps near the groin, buttocks, armpits, and genitals can return again and again. There can be...Reactions0reactionsComments6 comments