Ask the Advocate: Community & Advocacy...Finding community has been a source of strength and inspiration for so many folks with hidradenitis suppurativa (HS). Finally, a space where we speak the same language, people get what...reactionscomments
Letting Go Of Shame: Alice's Journey Opening Up About Her HS...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Alice, and she shared how she's learned to...reactionscomments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)...Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help. You deserve support and healing, and I promise...reactionscomments
Ask the Advocate: Wound Care & Home Remedies...Managing hidradenitis suppurativa (HS) wounds can be challenging. What might work for one HS warrior might not work for another. It is a balancing act that takes patience, perseverance, and...reactionscomments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Kristen, and she shared how she manages her...reactionscomments
Red Flags in Healthcare Providers: When Do I Say 'No?'...Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and countless other nurses and medical practitioners. Through experience...reactions1comment
Pomegranate Spritzer...The heat is here and that means we all could use something refreshing to cool us down. As HS patients I know we have to sacrifice a lot of the...reactions4comments
Embracing Change: Kim's Journey With Hidradenitis Suppurativa...Editor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews...reactionscomments
Doctors for Hidradenitis Suppurativa...What qualities do you look for in a doctor?...reactions13repliesHealthcare Team
A Real Unicorn (Doctor): Part 2...In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try the topical cream, but because of one of...reactions14comments
Meera Thirtha...Meera Thirtha is a single mother and lives in India. When she was in her late thirties her husband passed away. With an aging mother and a young daughter to...
Travelling with HS...Hi guys! I'm off to Germany next week and I'm wondering do any of you guys have any tips and tricks on travelling with HS?? I'd love to hear. What...reactions1replyTravel
A Real Unicorn (Doctor): Part 1...Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you lump all of these together, they are comorbidities...reactions6comments
Overcoming Adversity: Hayley's Journey to Acceptance...The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Hayley and she shared why she has chosen...reactionscomments
Dealing with the physical and mental toll...I am looking for some support. I've had hs for 15 years but only got diagnosed and treated for about 6 months now. I have severe anxiety and depression....reactions4repliesDepressionCopingCaregiving
A Disease Beyond Just Flare-Ups: How HS Can Cause A Dent In Relationships...I was in my early 20’s when I finally learned to correctly pronounce the tongue twister – Hidradenitis Suppurativa. Indeed, it was a relief to know that I had a...reactionscomments
Not Well...For the past 3 weeks I have been feeling really ill. I have coughed and just felt drained. So this week a boil reared its ugly head again. I was...reactions9comments
Gabriella Birzh...Gabriella Birzh is a 22 year old paralegal from New York City who hopes to attend law school in the near future. She was diagnosed with hidradenitis suppurativa when she...
Dietary Restrictions and Disordered Eating: What You Need To Know...Author's note: This article discusses eating disorders and weight loss with a mention of pounds lost in relation to height. If you are struggling with an eating disorder, this article...reactions1comment
How Do I Connect With Other People In The Hidradenitis Suppurativa Community?...Many people with hidradenitis suppurativa (HS) have told us that it can be challenging to find other people in your community who truly understand your experiences with HS. Our goal...reactionscomments
