I Love to Travel But I Do Not Love Flying: Managing Airports with HS...I am writing this on my first plane ride in two years. After months of not flying due to the COVID-19 pandemic, I am flying home for a wedding. I...Reactions0reactionsComments0 comments
Rolling On With HS (Part 2): Dealing With Negativity Around Your Mobility Aids...In case you missed it, check out Part 1 of this series! Using a mobility aid for HS is probably a lot more common than you think and unfortunately, ableism...Reactions0reactionsComments0 comments
Digital Health vs. Digital Therapeutics...Technology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments0 comments
Low-Carb Peanut Butter Protein Packed French Toast 🍞...Hello, Beautiful People. Thank you for coming by to my profile to check out my very 1st episode of Cooking With Joey. Just to give you all an idea of...Reactions0reactionsComments6 comments
Do you resonate with the term 'rare disease' ?...Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was considered a rare disease. We want to know:...Reactions0reactionsComments3 repliesAwareness
Tell us you have HS without saying you have HS......Having to explain your HS to those who don't get it can be exhausting. No explanation is required for this trend - let's hear what you got! 💜...Reactions0reactionsComments35 repliesAwareness
Stigma and Shame: How It Has Affected My Life...Almost four years ago, I was diagnosed with hidradenitis suppurativa, a chronic inflammatory skin condition that affects the hair follicles. Living with this skin condition was complicated because it is...Reactions0reactionsComments3 comments
Selina’s Ramblings and Oddities: First Edition...Hello everyone. Today I thought I would write just a blog-style article about what’s been going on with me and my Hidradenitisy (it’s an adjective, I swear) life. I entitled...Reactions0reactionsComments0 comments
My Lovie 💜...I just wanted to share how much I love my girlfriend and I will always be here to support her through this. She is so amazing, beautiful, and the best...Reactions0reactionsComments3 comments
Ask the Advocate: Triggers...In case you missed it, check out part 1 of this series, where we asked our advocates about their diagnosis. For so many HS warriors, finding out what triggers your...Reactions0reactionsComments0 comments
Product Review: MeUndies...If you are like me, you are forever searching for underwear and/or pajama and lounge shorts that don’t irritate flares or cause new ones. With all sorts of styles, cuts...Reactions0reactionsComments0 comments
Your Hidradenitis Suppurativa Story...There were so many emotions that came up for me when I began telling my Hidradenitis Suppurativa (HS) story. The main feeling was shame. It almost silenced me until one...Reactions0reactionsComments1 comments
Rebecca Quinn...My name is Rebecca Quinn & I’m 24 years old and from a small village in Donegal, Ireland. I have suffered from Hidradenitis Suppurativa since I was 13 years old...
Keto Brownie Batter Shake Hack...I don’t know what’s with me, but I get nauseous a lot. I know it originally was because I was on Metformin, but I haven’t taken Metformin in months. I...Reactions0reactionsComments1 comments
Chaga mushroom?...I was just wondering, does anyone have any personal experience using chaga mushroom for their inflammation? It comes in tea, powder, and pill form, and I was wondering if anyone...Reactions0reactionsComments0 repliesTips & AdviceDiet & NutritionFlares
Getting It Done: How To Push Through Chores During A Flare...It would be lovely to be able to spend all of your flare days in bed snuggled up to a heating pad and watching your favorite movies, but life doesn’t...Reactions0reactionsComments0 comments
Things I Wish People Knew About HS...Hidradenitis Suppurativa is a complex disease. It presents aggressively for some patients while other patients have milder cases and remain well within that spectrum for their entire journey. Because chronic...Reactions0reactionsComments0 comments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
