HS & Ink: How To Safely Get Tattooed When You Have HS...As someone who came from a long line of individuals with tattoos (my dad, all of my siblings, many of my aunts and uncles, cousins, you name it!), I was...reactions5comments
Mandira Harinath...Mandira Harinath is a 32-year-old freelance writer from India. She likes to write about topics related to health, nutrition, and lifestyle. Raised by a single mother and maternal grandmother, Mandira...
Ask the Advocate: Diagnosis...For so many of our HS warriors, the road to diagnosis is long and involves many misdiagnoses. In fact, on average, it takes people about 7 years to get an...reactions4comments
Weird scar?...I had a small one in groin area two years ago. It was right where the elastic part of my underwear were on inner thigh/groin area. I used heat compress...reactions5repliesScaring
Living With A Fistula - A Literal Pain In The Butt!!...Fistulas, a literal pain in the butt. If you haven't heard of a fistula don't worry, neither did I until I, unfortunately, was diagnosed with one. Let's talk about what...reactions3comments
Public Assistance...Being officially disabled, according to the U.S. government’s definition and designation, is tricky. People who haven’t had to deal with disability don’t know that even that is divided into two...reactions4comments
HS & Depression Part 2: Tips To Deal With Depression During A Flare...In case you missed it, check out Part 1 of this series! Depression and HS are a tough combination. Dealing with the physical pain of HS and the emotional anguish...reactions2comments
Community Views: What I Wish Others Knew About Hidradenitis Suppurativa...Hidradenitis suppurativa (HS) can cause symptoms that are painful and embarrassing. Itchy or painful bumps near the groin, buttocks, armpits, and genitals can return again and again. There can be...reactions11comments
I Love to Travel But I Do Not Love Flying: Managing Airports with HS...I am writing this on my first plane ride in two years. After months of not flying due to the COVID-19 pandemic, I am flying home for a wedding. I...reactionscomments
Rolling On With HS (Part 2): Dealing With Negativity Around Your Mobility Aids...In case you missed it, check out Part 1 of this series! Using a mobility aid for HS is probably a lot more common than you think and unfortunately, ableism...reactionscomments
Digital Health vs. Digital Therapeutics...Technology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...reactionscomments
Low-Carb Peanut Butter Protein Packed French Toast 🍞...Hello, Beautiful People. Thank you for coming by to my profile to check out my very 1st episode of Cooking With Joey. Just to give you all an idea of...reactions6comments
Do you resonate with the term 'rare disease' ?...Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was considered a rare disease. We want to know:...reactions3repliesAwareness
Tell us you have HS without saying you have HS......Having to explain your HS to those who don't get it can be exhausting. No explanation is required for this trend - let's hear what you got! 💜...reactions35repliesAwareness
Stigma and Shame: How It Has Affected My Life...Almost four years ago, I was diagnosed with hidradenitis suppurativa, a chronic inflammatory skin condition that affects the hair follicles. Living with this skin condition was complicated because it is...reactions3comments
Selina’s Ramblings and Oddities: First Edition...Hello everyone. Today I thought I would write just a blog-style article about what’s been going on with me and my Hidradenitisy (it’s an adjective, I swear) life. I entitled...reactionscomments
My Lovie 💜...I just wanted to share how much I love my girlfriend and I will always be here to support her through this. She is so amazing, beautiful, and the best...reactions3comments
Ask the Advocate: Triggers...In case you missed it, check out part 1 of this series, where we asked our advocates about their diagnosis. For so many HS warriors, finding out what triggers your...reactionscomments
Product Review: MeUndies...If you are like me, you are forever searching for underwear and/or pajama and lounge shorts that don’t irritate flares or cause new ones. With all sorts of styles, cuts...reactionscomments
Your Hidradenitis Suppurativa Story...There were so many emotions that came up for me when I began telling my Hidradenitis Suppurativa (HS) story. The main feeling was shame. It almost silenced me until one...reactions1comment
